AboutFace USA provides emotional support and information to persons with facial differences and their families. AboutFace promotes public education and awareness.
Ear Community is a warm and supportive community for those who have any or all of the following: varying degrees of hearing loss, Microtia, Atresia, Hemifacial Microsomia (HFM), Treacher Collins, or Goldenhar Syndrome. You will learn more about parent advocacy, self advocacy and patient advocacy. You will discover information that can help you understand your options, find helpful resources, and learn about the latest technology and surgical options.
The Phoenix Society for Burn Survivors is the leading national nonprofit organization dedicated to empowering anyone affected by a burn injury through peer support, education, and advocacy.
Eye Cancer Network is the first online-based community dedicated to eye tumor patients. This site was developed to help patients around the world find much needed information and research on the various forms of ocular tumors and related eye diseases. This includes detailed descriptions, images and information about the diagnosis and treatments for each of these disorders.
Support for People with Oral & Head & Neck Cancer (SPOHNC) is a patient run support network providing group meetings, networking, newsletter and insurance information for oral, head and neck cancer survivors.
Patient Advocate Foundation serves as an active liaison between the patient and the insurer, employer, and/or creditors to ensure access to care, maintenance of employment, and reservation of financial stability. Case managers, doctors, and attorneys work through the Foundation.
Melanoma International Foundation works with patients and caregivers to develop personalized strategies with patients so they may live longer, better lives.
American Childhood Cancer Organization is a nationwide organization that offers support and advocacy to families of children with cancer, survivors of childhood cancer, and the professionals who care for them. Informative books are provided free of charge to those with financial constraints.